National organizations offering online education and guidance & disease specific information for family caregivers
- Alzheimer’s AssociationThe Alzheimer’s Association is the leading voluntary health organization in Alzheimer’s care, support and research. Their mission is to eliminate Alzheimer’s disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Learn more here.
- AARP Family CaregivingThe AARP Family Caregiving site offers education for in home caregivers on medical, financial, and legal issues, caregiver life balance, local resources, and personal stories, as well as a support helpline. Learn more here.
- The Association for Frontotemporal Degeneration (AFTD)AFTD promotes and funds research into finding the cause, therapies and cures for frontotemporal degeneration. They also offer information, education and support to persons diagnosed with an FTD disorder, and for their families and caregivers. Learn more here.
- Family Caregiver AllianceFor 40 years Family Caregiver Alliance has supported and sustained the important work of families and friends nationwide who care for adult loved ones with chronic, disabling health conditions. The site provides a learning center for caregivers including addressing caregiving issues and strategies as well as videos and webinars. The site also offers FCA CareJourney, which is a secure online service for quality information, support, and resources for family caregivers of adults with chronic physical or cognitive conditions such as Alzheimer’s, stroke, Parkinson’s, and other illnesses. Learn more here.
- The Lewy Body Dementia AssociationLBDA works to raise awareness of Lewy body dementias (LBD), promoting scientific advances, and supporting people with LBD, their families, and caregivers. LBD is a complex disease that can present a range of physical, cognitive, and behavioral symptoms. It dramatically affects an estimated 1.4 million individuals and their families in the United States. Learn more here.
- The National Caregivers LibraryThe National Caregivers Library is one of the most extensive libraries for caregivers that exist today. Find hundreds of articles, forms, checklists, and links to topic-specific external resources, organized into logical categories on an easy-to-navigate site. Learn more here.
- National Institute on Aging: Alzheimer’s Disease Education and Referral CenterThe National Institute on Aging site includes many resources from the National Institutes of Health on Alzheimer’s disease and other forms of dementia, including information on clinical trials and current advances in scientific research. Learn more here.
- Universal Dementia CaregiversUniversal Dementia Caregivers (UDC) is a non-profit organization dedicated to educating caregivers, families, and communities supporting loved ones with Alzheimer’s and other dementia-related diseases. UDC offers training and educational opportunities on a wide variety of topics related to dementia care. Learn more here.
- U.S. Department of Veterans Affairs – Caregiver SupportThe VA offers a Caregiver Support Program for caregivers of veterans, which includes training, educational resources, multiple tools for caregiver success, and a Caregiver Support line (855-260-3274) which can connect caregivers to local support systems. Learn more here.